Yesterday, 23-year-old girl from Guangdong Province Huang Niciao was receiving treatment at Peking Union Medical College Hospital. Huang Niciao has suffered from systemic lupus erythematosus for ten years and now she has developed renal failure.
● If I had seen a doctor carefully at the beginning, perhaps I would live more comfortably now. Unfortunately, there is no such beginning. Don't blame me for not being strong enough. I have knelt down and begged so many people to save me, and I have traveled so many miles to buy medicine. Unfortunately.
● Living miserably may not be happier than dying peacefully, so please do not blame a person who has been tortured by illness for a long time.
● "For ten years, I think I have lived up to my fate. At least I have tried. I have survived miserably, lived humbly, but eventually I cannot escape the consideration of the Grim Reaper."
● "Everything is too late. A spring wound too tight will eventually break someday."
● "For ten years, I have lived long enough. I am satisfied, except that I haven't taken good care of my parents."
— Excerpt from Huang Niciao's online diary "Let her eat what she wants as much as possible" this kind of last will finally fell on me." The day before yesterday, Huang Niciao wrote a new online diary. Huang Niciao, a graduate of Southern Medical University, has suffered from systemic lupus erythematosus for ten years. Recently, her condition worsened and she was admitted to Peking Union Medical College Hospital. Meanwhile, she began to reflect on "the end" in her diary.
Working four jobs simultaneously to earn medical expenses
Yesterday, in the immunology department of the West Hospital of Peking Union Medical College, 23-year-old Huang Niciao appeared very frail.
Huang Niciao is from Jialing County, Meizhou City, Guangdong Province. She recalled that in 2001 when she was in the second year of junior high school, she experienced severe swelling and unbearable pain all over her body. After examination, she was diagnosed with systemic lupus erythematosus. Her father supported the family by repairing small appliances, and every year he could only take her to the hospital for treatment when she couldn't bear the pain, which cost two or three ten thousand yuan each time. In 2007, Huang Niciao was admitted to Southern Medical University, but her mother became paralyzed due to hypertension and stroke.
According to friends, starting from her first year in university, Huang Niciao worked four jobs simultaneously, tutoring, washing dishes, distributing flyers... sleeping only three hours a day. In her second year, she also passed the accounting qualification exam through self-study, earning nearly two thousand yuan per month, but she basically ate only two steamed buns a day. "My family has borrowed nearly 200,000 yuan for me. My mother is paralyzed and needs treatment, so I have to earn my own medical expenses, 2000 yuan per month. If there is no money, I have to stop taking medicine," said Huang Niciao.
"Terminal Diary" moves netizens
In June this year, Huang Niciao graduated from university, but due to her illness, she was directly rejected by many companies during the preliminary interview.
In July, she came to Beijing and rented a place near Tsinghua University. She wrote about her daily experiences on Renren.com, attracting the attention of many college students including Guo Zheng. On November 5th, severely ill Huang Niciao developed renal failure and was admitted to Peking Union Medical College Hospital.
"For ten years, I think I have lived up to my fate... but ultimately I cannot escape the consideration of the Grim Reaper," "A spring wound too tight will eventually break someday"... After being hospitalized, death began to be frequently mentioned in Huang Niciao's diary. For this reason, netizens called it a "terminal diary" and called for donations for Huang Niciao.
Guo Zheng said that he took the lead in establishing a QQ group for the Huang Niciao Rescue Fund, but currently, there are only 280 people in the group. "Now our donations can only ensure her three meals a day and a 30-yuan bed fee. We still can't raise enough money for future treatments," said Guo Zheng.
Yesterday, a doctor from Peking Union Medical College Hospital introduced that Huang Niciao had developed renal failure. The current treatment options are dialysis or kidney transplantation, both of which are quite expensive. The hospital specially invited experts for consultation and is formulating a specialized treatment plan for active treatment. "If the kidney transplant goes smoothly, there is still a good chance of improvement."
■Dialogue
"I am studying medicine and know about my disease"
Beijing News: Frequently writing about death in your diary, are you desperate about life?
Huang Niciao: I am studying medicine myself, and I know what stage my disease has reached. My disease has already reached its final stage, unless a miracle happens.
Beijing News: This disease can be controlled in the long term, right?
Huang Niciao: Yes, the doctor also told me "it's your own fault." This disease cannot stop medication and cannot be overworked, but I couldn't guarantee any of these things in the past ten years. It was inevitable for my condition to develop to today.
Beijing News: Have you complained?
Huang Niciao: To whom should I complain? This is not caused by genetic inheritance from my parents, nor by myself, and it certainly can't be blamed on the people around me. I have seen many sick friends commit suicide. But I don't want to yet.